The Gift Of Independence

Seven-year-old Elliot suffers from seizures that make riding a normal bike a dangerous activity. Dravet syndrome has resulted in severe neurodevelopment consequences for Elliot, including mental retardation and an inability to coordinate voluntary muscular movements. As a result, riding a bike required the constant attention of his parents, and he was only able to ride for limited periods of time.

Upon hearing his story, Variety of Illinois agreed to pay for a special bike for Elliot using funds raised through a partnership with Fred Astaire Dance Studios. The family was presented with the bike at the Astaire Awards Championships (AAC) in Illinois in July 2007. With his new adaptive bicycle, Elliot can ride as often as he likes with far less risk than riding a normal bike, which can frequently spark seizures.

Although Elliot is generally resistant to the ongoing physical therapy he receives for his seizures, he truly enjoys riding his new bike, which is one of the best possible sources of physical therapy. Being able to ride to his heart's content is not only a source of joy for Elliot, but for his parents as well.

"Because of the built-in safety features and the wide wheelbase, we no longer have to worry about him hurting himself in the event of a seizure,” says Elliot's mother, Mary Anne. “This gift has offered him such a sense of freedom and independence. That is so important for him since we have had to place so many restrictions on him during his day-to-day life because of his disabilities."

Variety – The Children’s Charity thanks Fred Astaire Dance Studios for its support and especially the opportunity to broaden Elliot’s horizons.